Honoring Our Armed Forces - Past and Present & News

photo credit: <a href="http://www.flickr.com/photos/7687126@N06/2523097574/">gb_packards</a> via <a href="http://photopin.com">photopin</a> <a href="http://creativecommons.org/licenses/by-nd/2.0/">cc</a>

Dear Friends,

I've had time this weekend to reflect on Memorial Day and what it means.   Our men and women in the Armed Forces put their lives on hold, leave their families at home, hopes and dreams are moved to the background, severe injuries, and limbs and life lost - all to protect us. The least we can do is honor them on this special weekend and especially remember those who have lost their lives serving in the military.   Take a few minutes this weekend to reflect on what it means to you.

I found the above picture and immediately fell in love with it because it could have been taken in Wisconsin.   Deer are apt to show up almost anywhere in our state except perhaps in the downtown area of a large city.  The picture in the header of this blog was taken in my backyard when the Magnolia Tree (northern version) was in full bloom.    Because the northern version is extremely hardy, the blossoms, branches, etc., are very different from the Magnolia trees in the south.  But, we'll take what we can get!

Thank  you all so much for your comments on my last post.   I will keep the blog and have already changed the name to http://ShufflingAlongWithPDandET.blogspot.com/   It's a little long, but since I'm technology challenged at times, I was afraid to change the title too much for fear of doing something wrong.   I didn't want Blogger to somehow get rid of my blog.  ha ha - yes, I'm a little paranoid with technology at times.

Sorry I haven't been around to read blogs much lately.   I'll start having a little more time now and my plan is to get back into visiting and reading.

Hope you are having a great Memorial Day Weekend.


Mary

Celebration Time

Photo from Public Domain Files

Dear Readers,

There is definite cause for celebration - I DO NOT HAVE Parkinson's Disease, but have now been diagnosed Essential Tremors.   Unfortunately, Don still has the PD diagnosis, but we'll get through that just like we would have gotten through both of us having the Parkinson's.   My next post will contain a brief explanation of Essential Tremors and how it compares to Parkinson's.  Stay tuned, if interested.

Wednesday, the day of the DaTscan was a long day.  We left the house at 6:00 a.m., picked up our son in law, who took over the driving.  Having a 9:00 appointment at the hospital, meant driving straight down with no stops.  It took a little bit of driving around before we found the right building to enter.  The gal on the phone neglected to give me accurate directions.  

I think I explained before that you have to drink a glass of water and take a pill, to prevent the iodine from harming your thyroid.   Then after a wait of 1 hour in the waiting room, it was time for the injection of iodine cocktail!     I felt nothing from that other than the poke of the needle.   Then came a 4 hour  wait where we could leave the building.    We chose to drive to the nearest Cracker Barrell for lack of knowing where there was any other restaurant.   It helped us kill time and we had lunch.

At 2:00 I had to report back to the hospital for the scan.   I wanted to include a picture of the machine, but now days with copyright laws, I didn't dare.  Let me just say it looks somewhat like a MRI machine - only half as long.   In my case they were only scanning my brain (guess I must have some brains then), so a conveyor belt system took me back to that opening.    There were two arms on either side of the opening that held two steel panels that must house the camera (so to speak).   Those arms moved  those large steel panels around in various positions around my face, head, neck, etc.   It was a little intimidating when the plates met in the middle blocking my vision from the room, but they slowly moved away and changed positions several times during the 1/2 hour scan.

When the scan was over, I was free to go home - another 2 hour trip north.   All in all, it is a very painless test/scan to have and isn't quite as confining as an MRI machine (when you are a larger person in a one-size-fits-all opening). If you ever have to have one, it really isn't anything to worry about or be afraid of.

Yesterday, Thursday, the doctor's office called with the good news.   The scan backed up her thoughts - I have Essential Tremors - not Parkinson's.   That is happy news as Parkinson's is a crippling disease - ET is not. although in some cases it can lead to  Parkinson's.  We'll worry about that when and if it happens.

Now what to do with the blog.  If I keep it, it will need a new name.   I originally started it as a type of reference as to the life of someone with Parkinson's.   

1.  I could keep it going with news on Don's progression (which is very stable at present).

2.  I could delete the entire blog.

3.  I suppose I could just make it a personal blog, but our life isn't very newsworthy at this age.

4.   I could change the name and write a little on ET, although there won't be as much to write about other than ongoing back issues (which are still present).

Any ideas out there.   I'll consider all of them because I really don't know what I want to do with it.

Thanks for sticking with us on this unusual journey.  It PAYS TO GET A SECOND OPINION!

Until next week,

Mary
   

Possible Misdiagnosis!!!!!!

Dear Readers,

I want to yell out GOOD NEWS, but I can't yet as it is not confirmed.   I might have ET (Essential Tremors)  instead of PD.   Ah ha - that's what I said when the specialist was talking to me.

On Wednesday I had an appointment in Milwaukee with a neurologist who specializes in Movement Disorders (Parkinsons, Essential Tremor, MS, etc.)   She had thoroughly reviewed my records before I arrived, and did the standard things each time you see a doctor -  check reflexes, watch me imitate her hand movements, and take a walk.   She also thoroughly quizzed me about the side effects of the Parkinson's drugs I had been taking -  symptoms before and after drugs, results, etc.   She spent a full hour with me in her office just talking.

It is her opinion that I have Essential Tremors rather than Parkinson's.   But, she wants me to have a DaTscan at her hospital in Milwaukee.   It will involve being there all day - drinking a special cocktail (do you want to come along?), inject another cocktail in a vein, etc.  That test will be the determining factor and will produce an image something like this:         

I wonder if I'll be radioactive and glow in the dark.  Woohoo!

I'm still in somewhat of a daze over this.  I'm not celebrating yet, but surely will when the final word is in.   I am thinking, however, that no wonder I was having so many side effects with the PD drugs.   Their purpose, I believe, is to replace the dopamine in your brain.   Well, if I don't have PD, but was getting PD drugs with extra dopamine, it doesn't take a scientist to figure out I was getting way to much dopamine.   No wonder I felt like I was totally drugged all the time - I  was.

Well, enough of that - the doctor did prescribe the proper med for ET, and told me to take 1/2 tablet at night to start with.   It does make me light headed for sure - one step down from dizzy.  Maybe that will lessen in time.   

Anyway dear readers, that's where we are at today!  My appointment for the DaTscan is May 1st - HAPPY MAY DAY!

It still isn't spring here even though the calendar says it is.  It's cold, rainy, and damp.   I'm trying to think S P R I N G !

Thanks for "hanging in there with me" on this journey -  we'll see where we go.   

Until next time,



Mary

Mother Nature Gone Amuck & RFA Update

Hi Friends,

Sorry I haven't posted in awhile.  It's time for the Animal Group on Twitter to have their big weekend-long monthly party.  Consequently we're busy with that.  Ha ha - can't handle as much as I could 10 years ago.

Well friends, the above picture is what we awoke to this morning - front yard and back yard.  About 3+  inches of slush.   Notice the ice on the patio covering?  Also notice the slush ridges on the street where cars drove through to get to work this morning.

Just yesterday we paid the wonderful man who takes care of snow removal.   We laughed at the time knowing it was supposed to snow yet last evening.   He's back now and busy cleaning up 3 inches of snow slush with about 1/2 inch of ice on the bottom!!  Of course the plow went through already and now we have about 10 inches of slush in the driveway at the base!

I'm happy to report the RFA treatment worked on the sacroiliac joint.  But the rest of my back is still a mess.     I'll be meeting with the pain doctor in about 3 weeks.  We'll see what she has to say.  Meanwhile, ice packs help some!

Poor Mario has wanted to get outside so bad this past week, and I won't let him because the ground was so wet yet.  He's only allowed out with his harness and leash on, and it's too cold/wet for his humans to be out there with him.   At this rate, he will have to wait until May at least.   Poor kitty.,    He's so deprived.  he he

That's all for today friends.  Thanks for stopping by and sharing in our misery of spring in Wisconsin.  It's really a nice state to live in - summers are especially nice!  Think SPRING!  Oh, my next blog post will be on the life of Dragon!

Mary

Birthday Greetings To Our Dear Daughter & HAPPY EASTER EVERYONE

SIL and daughter

Dear Readers,

Thought I'd take a break from the usual Parkinson's related topics and wish our daughter a 

HAPPY BIRTHDAY   

with love from Mom, Dad, and Mario

 We are very proud of the person she has grown into.   Apparently her father and I did something right through the years.  Being an only child she did NOT get everything she wanted, but she was spoiled in that she did not have to share our attention with a sibling of the human kind  anyway.  (She would tell you she did have to share with the dog and cat!)   I remember many weekend trips to grandma and grandpa's house where I'd hear "Fritz - move over - you are hogging my half of the seat!"  "Mom - Make Fritz move over - he has his paws on me."  It was funny and makes me laugh when I think about it.

She grew up, married a wonderful man (our son-in-law) and they are happy with two cats and two gerbils in their life.   They are all very special to us.

Amos, age 17

Keiko, Age 17

We had a wonderful family Birthday celebration yesterday with our SIL'S brother and wife, SIL's parents, and of course the birthday girl, SIL, and Don and I.  We are fortunate in that our extended families are all small, thus for birthdays and some holidays we can all enjoy them together.

Take a look at that cake!  It was every bit as good as it looks.   It came from a new Guatamalen Bakery that had recently opened in their city.   I think it might become a new family favorite.

What a great day we had.

HAPPY EASTER or PASSOVER EVERYONE

Mary

Senility Versus Drugs

Dear Readers,

Well, I did it again - screwed up on an appointment.  ha ha - I showed up at the dentist's office a week early for a fitting of a new partial plate.   I was just in there last Thursday (5 days ago - yes friends, only 5 days ago).  One of the office girls even opened the door for me because I was using the walker, and it's a chore and a half to struggle with doors that swing out when using a walker.

I went in, thanked her for opening the door for me,  took my coat off, started flipping through a magazine when another office girl came discretely over by me and showed me a print out of upcoming appointments.   Today's date was NOT on that list. ha ha!   April Fool's Joke On Me  to me!  The sad part is they gave me that same printout when I left there last Thursday.  I could swear I remembered seeing "Dentist" on my calendar! for today.,

I mumbled something about "oh, sorry - I know it's the Parkinson's Drugs messing with my brain again."   The gal said "well at least you can blame it on something that makes sense!   (She was patting her 6-months' pregnant belly) and said I blame it on the mommy-to-be factor myself."

For the record, I checked the calendar when I got home and there is NOTHING WRITTEN ON IT FOR TODAY!    Since I can carry on a conversation rather well yet, I'm sure it's the Parkinson's Drug (Sinemet) that I'm taking.   (1/2 table 2 x a day - I'm not even up to a whole tablet twice a day yet).  Now I have to remember to go next week on the correct day.   I'm thinking of the old string around the finger bit -  will this do it?  

Apparently I can't be trusted with a calendar anymore!

What's your vote - Drugs or Senility?

Until next time.

Mary

FInally Catching Up On News

Countryside on the way to Rome, Italy October 2008

Dear Readers,

My apologies for taking so long to update.     My only excuse is that our involvement with Twitter/#nipclub can keep us pretty busy at certain times if a party is planned.

Two weeks ago I had the RFA (Radio  Frequency Abulation) procedure done.  It's taken about 2 weeks to really kick in, but it has helped greatly with the pain in the Sacroiliac.   I still have other pain - arthritis and fibromyalga in different areas - so I'm still on Tramadol for the pain, but I do cut back on it on days that I can. I'm so happy to report that the RFA was successful.  YAY!

Yesterday I was supposed to go to Milwaukee to meet with a Parkinson's specialist.   Wouldn't you know it - SNOW!   (Darn Groundhog needs to be replaced - we're supposed to have spring now).   It started snowing yestgerday  around noon, giving us 5 inches of wet, heavy, slippery snow by last night.   I heard the weather forecast predicting this storm on Saturday so decided to call and cancel the appointment.     Our son-in-law said driving in snow didn't bother him,  but it would have really bothered me.   I would have been sitting on pins and needles the entire trip.   While I'm anxious to meet with the PD specialist, I didn't feel it was worth the risk and hazardous roads to do so.   My appointment is now re-scheduled for April 17th.   I hope it  doesn't snow then, but it could!!   

Now I need to find a ride for the April trip so son-in-law doesn't have to take another day of vacation.  Daughter is like me - she doesn't want to drive in Milwaukee either.  It's a concrete jungle down there with 3 major freeways merging downtown and cars going 80 MPH.   You need to be really sharp in the brain, which Don and I aren't at this age.   If we knew where we were going and knew where the interchanges were, it would not be so bad - but you don't become familiar and comfortable with that when you only travel down there once in every 3-4 years.

Stay tuned.

Hope it's spring where you live!   It's going to  be a long while a-coming around here!

Mary