Finally!!

Dear Friends,

Some good news for a change (I think!)   Yes, I'm headed for the big needle with the hopes of getting relief for my back.   That will happen next Thursday.    I met with a new spine doctor (Pain Management doctor actually) this morning and she confirmed that my back is a mess.   
She is the first doctor to tell me that in the past 18 years.   (Yes, I've been complaining about my back at least that long.)

Most doctors usually tell me "well it's not that bad to be causing you that much grief".   Well, maybe it's not that bad compared to some, but I'm very sensitive to pain.   We'll try an epidural and see if that helps.   I've been getting shots in the sacroiliac joints for at least 4 years now (or longer), which really helps my butt cheek and leg,, but it never did much for  the back.  The doctor in Appleton kept saying all my problems were related to the sacroiliac joint when I felt all along that it was back related.   Sure enough, the MRI shows that L1 in the spine is bad - no wonder I've been complaining for so many years.  (It's all  arthritis related.)   I  will be one very happy person if this works.  ha ha - If it doesn't work, I'll eat humble pie and you'll hear me complaining again!!

The doctor also approved a back brace for me to try, and she's authorized PT starting next week.   My friends have had the back brace, so I know it will be uncomfortable sometimes, but maybe give me some relief overall.  We'll see.  I'm willing to try it and she recommended trying it as a possibility.   At least she's willing to try whatever is necessary to give me relief.  

She did mention the possibility of stronger medication, but then said she felt it might be too much for me since I'm taking Parkinson's meds that already make me tied.   I might turn into a zombie if I take anymore drugs.  We don't need that as there are already days that I feel really out of it.

Our  days presently are wonderful weatherwise.   Bright sunshine, temps hovering in the high 60's - just perfect for fall.   Don took Mario outside this afternoon, and he was one happy cat. These types of days are numbered - in another week it's going to turn very cold.  It's my kind of weather for sure.

Will close for today.  Just wanted to share some good news for a change instead of always griping.   By the way, Harrison and his dad are still doing the yard for us.   His grandmother/mother just had serious back surgery - they put 2 steel rods down each side of her spine - from the tail bone up to the shoulder.   Her husband called Wednesday night after surgery and said all went well.   I'm hoping that is still the case, but he hasn't corresponded since Wednesday night.  She needs some prayers, if you can, because she has really suffered with her back longer and more than I have.   This is her 3rd surgery on her back.  It makes me shudder to think about what she has gone through and will go through before she's healed.

Thanks for reading my blog and taking this walk with me.    I'll get back on track with PD related things soon but presently I'm status quo on that subject,

Mary

What A Night Aain!

Mary  & Don in Cannes, France
2008 on Italy Cruise Trip

Dear Friends,

Before I give you the latest update, I wanted to apologize to my faithful readers as I know some of you and some of Mario's faithful followers on Twitter have been worried about us not being around much.   I have  been giving most of my energy the past 2-3 weeks on advertising the #nipclub Monthly's latest DinoPawty on Twitter.   Because of a bad back, I can only sit at the computer for short periods of time or i really pay for it.  I especially feel bad that we haven't been around reading your wonderful blogs because we really do enjoy reading them.   I hope to rectify this in the coming weeks.   

If you read my last post a couple of weeks ago, you'll remember I had to play detective again with my meds.   I definitely know it was the Amantadine that was/is upsetting me stomach,.   I have been limping along with taking 1/2 the dose every day instead of the full 2 pills twice a day.   It's much better, but I'm still a little woozy.    I'm especially tired and woozy tonight because last night was a very "short night" at our house.  The sad part of this change in meds means that I do shake a little more than I should be when the Amantadine dose wears off.  I'll see the Neuro in October, so we'll see what he has to say about the situation.  Meanwhile I put myself back on the first blood pressure change of medication that my family doctor originally prescribed as that med is not the one making me dizzy and sick to my stomach.  I told my family doctor what I had done when I saw him Friday.  He said he was proud of me for taking  matters into my own hands and solving the problem.  Well, in my way of thinking, it was the logically thing to do.  Even the Neuro doctor said to stop the med if it was giving me trouble!

About 2:30 in the morning last night I awoke to someone yelling "Please let me in!"  This scared the daylights  out of me as we did have two of the bedroom windows open due to having such beautiful, cool weather the past few days.   I quickly looked out the bedroom window I was in to see if anyone was around.  No one in sight.   Then I thought of calling the police to have them check our house outside and inside with me!  But that meant getting dressed. UGH!  Okay - put on your "brave hat" and check the house yourself.  

After walking thru the upstairs (main floor) and finding the doors locked, I decided the basement should be checked just to be on the safe side even tho there is no access to the outside from the basement other than little skinny basement windows that would have to be broken to enter.   Now I was too chicken to go down there myself, so I woke Don up.   I convinced him to go to the basement for me.  he he - neither one of us would be capable of fighting off an intruder of any size if we were to ever find one!

Obviously Don did not find anyone in the basement either.   We are now thinking that Don must have been dreaming and shouted out loud what he was dreaming.   He has been known to talk in his sleep.  I'm comfortable with that theory - especially after turning on all  lights in the house and finding the doors still locked.  Meanwhile Mario was sitting under the kitchen table watching his two insane humans running around the house checking it out in the middle of the night.  That was one time I wished we would have had a dog to alert us with some woofing had the situation been real!   Mario was just sitting under the table calmly taking his Friday night bath!  What a guard cat we have!

I have also been having a few computer issues, which our wonderful son-in-law fixed tonight.  He spent about 2 hours with me on the phone while he worked remotely on my computer from his home.   What a life saver that special tool is that allows him to do things remotely on my computer.  It saves him at least an hour because of not having to drive to and from his home.

I think I have mentioned several times that it takes me so much longer now to accomplish anything - either mentally or physically.   There were some days in the past two weeks (while programming tweets in Tweet Deck to go off automatically for me) where my mind just went blank and I couldn't think of how to change the sentence around to make it different from others so TD and Twitter would accept it.  Is that a sign of just getting older or is it part of the PD. Who knows!

Well, it's  off to bed for me tonight.  I'm hoping for a good night of sleep with NO interruptions!  I'll try to get around to reading blogs this next week.  Thanks for being so understanding.

Mary