Dear Friends,
What a horrible night I had. So, to cheer myself up and my readers, I just had to post this delightful cartoon by
@KokoroPurrs. His mom is a cartoonist and does wonderful work. Her cartoon drawings of her cat always makes me giggle. Please take a minute and go over to their blog site and look thru some back issues of the blog. She very graciously gave me permission to use some of her delightful cartoons in my blog. (Mario is going to be so jealous).
Now back to last night. I went to bed at the normal time of 11:00 p.,m. Some time during the middle of the night I felt the need to make a bathroom trip. I tried to turn over on my side to get myself out of bed. My body would not move. I couldn't roll over nor could I sit up. After struggling for a few minutes to get myself up, I started yelling for Don (who sleeps in the room next door). He's hard of hearing, so he didn't respond immediately, but did finally come in to help me. He had to help me up out of bed, and it was all I could do to lift my body with his help and to grab on to the walker. Then my legs didn't want to move. I felt like my body was frozen in time. Finally I got them to take tiny, tiny baby steps to get myself to the bathroom. After I finished what I went in there for, I had all I could do to raise my body to start walking again - well not really walking but taking tiny dragging steps to get back to bed. Talk about scary. If it would not have been the middle of the night I would have suggested going to the emergency room. Something was drastically wrong.
This morning when I woke up, I could move enough to get myself out of bed, but my feet were still taking the tiny steps, and I really had to hold on to the walker for dear life. After choking down some cereal, I went back to bed and slept until 11:00 a.m, and was more like my old self when I got up. Still not real stable on my feet, but at least I could take my normal, usual steps.
I began to wonder if I was experiencing Bradykinesia that Debra discussed in my last blog post. Or was I progressing to the next level of Parkinson's? It really scared me and I think it scared Don too.
Then I happened to think today that I had seen my family doctor on Monday for back problems. After getting the results back from the MRI and finding my back had worsened since 2008 (no kidding - I knew that before the MRI results were in), he gave me 3 new drugs to add to my cocktail!! One of those is Gabapentin 300mg 2 x day. This drug is sometimes used to treat seizures and used for RLS (of which mine has been getting worse). I'll be calling the doctor's office Monday morning to tell him of these latest developments, but in the meantime, I dropping that drug.
He also prescribed Clonazepam 0.5 mg 1 x day at bedtime. This is used to treat panic attacks (I don't have that???). The PAL says it clams your brain and nerves. YIKES. Now I'm not sure which one gave me the immobile symptoms, but I'll be stopping that one too until I talk to the doctor. Fortunately, I had only started those drugs on Friday and it was Friday night when I had the problem. So at least I don't have to go thru withdrawal symptoms.
The other drug he prescribed was Tramadol HCL 50 mg 3 times a day with Tylenol - used for pain. I'm sure Tramadol didn't give me the symptoms I experienced, so it has to be one or both of the other drugs. I will take Tramadol before bed tonight along with Tylenol.
Oh how I wish I didn't have to be on all these drugs. "They shoot horses - don't they?" I've tried to maintain a sense of humor thru this entire time since being diagnosed with Parkinson's - but I must be honest - the humor is running out.
Mary