Random Acts Of Kindness

Dear Readers,


The past two weeks I was out and about more - dentist one day - short shopping and errands on other days.  My faithful companion - the walker - was with me on each of those outings.   


Walkers on wheels are a great invention, but they are a little cumbersome to use, especially when going in and out heavy doors that don't have the automatic opener.  Going in isn't to difficult, but you do have to position your self off to the side of the door, open the door with the right hand, then slowly navigate the walker thru the door while holding the door open with your right hand or body - or butt.


Going back out when the door is heavy is a real challenge.   Again, you have to move yourself to the left of the door, hold the walker with the left hand, use the right hand to pull the door towards you, then swing your butt over to hold the door open while you grip the walker with both hands and turn the walker in the right direction to go out the door.   (Big rumps do help. he he)


I was pleasantly surprised at the dentist's office recently when a gray-haired man (probably close to my age) came over and asked if he could assist me.   I was struggling with that door - a room full of people all waiting to see the hygienist or dentist, and ignored by all except the nice elderly gentleman.   I was very grateful and thanked him profusely.   It was a random act of kindness that was so appreciated.


Then on Saturday we were invited to a birthday party for the granddaughter of a friend.   It was a rainy, drizzly day, so Don pulled in the driveway to let me out.  I didn't bring a walker because I knew it would be crowded in the house, and I usually don't need it in a house anyway.   Much to my surprise, the son of my friend walked out to greet me, offered me his arm for assistance, and helped me up the steps to his home.   Their entry way has wooden steps leading to a deck like platform - there is no railing.    That was another random act of kindness that was so appreciated.


When we got ready to leave, the other son of that friend asked me if he could assist me to the car where Don was again waiting in the driveway.   Another much appreciated random act of kindness.   I mentioned it to their mother the next day and told her she could be proud of her sons for their willingness to help.  So very thoughtful of both young men.


Then this morning I was attempting to get into Barnes & Noble's store and again was faced with big heavy doors that had to be manually opened.  Along came a lady who appeared to be my age and perhaps even a year or two older.   She said "Here, let me get that door for you!"  Another random act of kindness!


Thru the years I have tried to do the same for people struggling with a door and a walker or wheel chair.  I guess what goes around eventually comes around.


You never know when an opportunity will present itself so you too can perform a random act of kindness.  I do hope you will take the opportunity and "make some one's day" because, in time, you too will be in need of the extra help.   These wonderful people certainly did "make my day" and I'm so appreciative.


Mary

Chance Encounter

Photo from Blog of Dr.  Jefferson

Dear Readers,

I'm always amazed at the chance encounters available in the Blog World and Twitter World.   You just never know who you will meet along the way and from what country.

I'd like to introduce to you today Dr. Duncan Jefferson who lives in Australia.   I was searching thru the blog world a couple of weeks ago and happened on Dr. Jefferson's blog  http://duncanjefferson.blogspot.com.  I immediately took a liking to his blog and followed it.   He writes on medical issues and non-medical issues, and i have found his blog most helpful and easy to read.  


There have been times when I've touched on a subject, and a couple of days later he has expanded on that same subject.   I'm honored that I can provide him with some post ideas, and he certainly has helped me with valuable information.   So thank you Dr. Jefferson for reading my blog and taking an interest in the subject matter I have talked about.


Please go over and take a look around his blog - I think you'll like what you see.   http://duncanjefferson.blogspot.com.


Stay tuned later this week for my next post on "Random Acts Of Kindness."


Mary

Dementia - Not Yet

Dear Readers,

The last of the leaves have been cleaned up, lawn mower put away, and snow blower ready to go, thanks to Don.   The above picture was taken about 10 days ago, the leaves have since fallen and the tree is bare.   Tonight we are to have snow!  Mentally, I'm not ready.


Well, there is good news and bad news for the week.   My 6-month checkup with the psychologist  was this week.   After testing, he asked me how I felt I was doing.   I said, "mentally I've slipped a notch - just in some areas".   He said he agreed with me.   I did slip a little in some parts of the test, but remained good on other parts.   It's an exhausting test as you are mentally challenged on every question or problem.  He didn't do the entire battery of tests.  Only did those that I scored poorly on 6 months ago.


Now 6 months ago I clearly remember the psychologist saying that I have a little Dementia.   This time I brought it up and he said "Oh, you don't have Dementia."   Now I know mentally I have declined a little since 6 months ago and the tests indicate I have declined, so did he make a mistake when he said I had the start of Dementia 6 months ago?   I can only suspect that was the case or he didn't clarify enough as to what he did mean, and I didn't question enough and accepted what he said. 


Why is this important to me?   Well, my mother's side of the family is full of Dementia/Alzheimer's history - starting with my grandfather (Dementia), followed by my mother, two of her sisters, and her remaining brother - all diagnosed  with Alzheimer's.  Because of this history,  the psychologist wants to see me every 6 months just to keep a handle on things and I agree.


The bad news is that I have declined a tiny notch mentally, but the good news is that clinically speaking, I don't have Dementia!    I can tell you that I'm in a mental fog a good share of my day, which I believe is from all the drugs that I'm on - most of which make me tired.   I can't seem to even prioritize things that need to be done.  Yes, I've tried making a list, but never am able to check off more than a couple of things a day on that list.   Several times a day I can wander into a room and wonder why I went in there.   I know this is somewhat normal as you age, but I think with me it happens more than what would be normal.  I'm talking several times a day.


The other thing I've noticed is that I've slowed down to a snail's pace physically too.   It takes me so long to accomplish anything.  Much of the time I feel overwhelmed at all that needs to be done around here leading up to Christmas.    The slowing down is no doubt the Parkinson's kicking in, and the drugs only magnify the problem.


To complicate matters, my back has been painful lately.  The MRI taken a week ago showed the arthritis in the spine has increased since 3 years ago.   My family doctor said I'm not a candidate for surgery (nor would I want it at this stage of the game), and the back doctor yesterday confirmed everything.   He did offer to give me a shot in the spine, but I'm not sure I want to go thru that.   I know it's risky to start fooling around with the spine.  I really can't stand upright for very long - about 3 minutes is max, then I have to lean on something or sit down.   So trying to accomplish anything standing up is about impossible.  Walking from the far bedroom into the kitchen is tiring on my back.   Don has been wonderful and has assumed so much of the physical work around here.  He does it willingly and without complaint, but i feel guilty not being able to do my share.  The spine doctor feels the weakness in my back and legs is due to the Parkinson's.    He's probably right.


Now on a good note - I bought a Nook, color, touch e-reader yesterday.   It's not the tablet, but one step down.  I'm able to navigate around it quite well, but typing on that tiny keyboard takes awhile as I keep making mistakes.   Kim says I'll get adjusted more after I've used it several times.   I do like it tho.   Now if i can only stay awake longer at night when I try reading.  Why don't I read during the day you ask?   Well, any time of day when I try to read, it puts me to sleep.  So, there is no good time of day for reading.


I called Kim for help and she walked me thru the process of getting the WiFi set up, something I've never had to do before.   She gave me some mini instructions, and now I should be able to read tonight.   It will be fun playing with a new toy!   I spent the extra money and bought the hard covered book that was available because I have trouble remembering things after reading.  All the information is on the device, but you have to remember what you read, leave the page, and do the steps involved.   It was just easier to buy the book for $8.00.


Stay tuned - next week I have an appointment with the Neurologist (I think it's next week).

We Are Grateful - Happy Thanksgiving

Dear Readers,


Just a quick update on my last post about the episode I had with freezing.   I'm sure now it was the drugs, so I've stopped taking the Gabapentin.  I'm sure that drug, combined with my Mirapex (which makes me sleepy) and with the Tramadol (which also makes me sleepy) I was just over drugged.  By noon on Saturday I was back to myself once again.     I believe the doctor prescribed that drug to help with the RLS problem, which is what the Mirapex also does, but wasn't quite doing the job any longer.   For now the Tramadol is helping with the RLS, so we'll leave things alone for now.


I'm so looking forward to dinner today.  We're invited to our daughter and son-in-law's house for Thanksgiving.   Our son-in-law loves cooking this special meal for his parents, his brother and girlfriend, and this year the girlfriend's parents, and, of course, Don and I.   He does a fantastic job, and this is his 12th year to treat us with this wonderful dinner.    We all bring a dish to help  out, but Ken does the basic meal along with special pies.  (Can't wait to see what pies he bakes this year - usually there are two kinds and sometimes three).   I always tell him that Kim's marrying him was better than marrying a doctor because he not only cooks, but keeps our computers in top shape too, and is so very good to our daughter and to us.


I'm very grateful for my wonderful family (especially Don who has been taking over with so much of the household duties and our wonderful daughter and son-in-law, and of course Mario.   I'm also very grateful to for our dear local friends and those wonderful friends I've met on Twitter and the blog world.  I am truly blessed.


Thank you dear readers for reading my blog and leaving your great comments.


Happy Thanksgiving to all of you.   I'm so blessed to have you in my life.


Mary

OMC - That Was So Scary!

Permission received from KokoroPurrs to use this Cartoon
http://kokoropurrs.blogspot.com/2011/11/why-cat-need-faster-computers.html

Dear Friends,

What a horrible night I had.  So, to cheer myself up and my readers, I just had to post this delightful cartoon by @KokoroPurrs.    His mom is a cartoonist and does wonderful work.  Her cartoon drawings of her cat  always makes me giggle.    Please take a minute and go over to their blog site and look thru some back issues of the blog.    She very graciously gave me permission to use some of her delightful cartoons in my blog.  (Mario is going to be so jealous).   

Now back to last night.   I went to bed at the normal time of 11:00 p.,m.   Some time during the middle of the night I felt the need to make a bathroom trip.   I tried to turn over on my side to get myself out of bed.   My body would not move.   I couldn't roll over nor could I sit up.   After struggling for a few minutes to get myself up, I started yelling for Don (who sleeps in the room next door).   He's hard of hearing, so he didn't respond immediately, but did finally come in to help me.   He had to help me up out of bed, and it was all I could do to lift my body with his help and to grab on to the walker.   Then my legs didn't want to move.  I felt like my body was frozen in time.    Finally I got them to take tiny, tiny baby steps to get myself to the bathroom.   After I finished what I went in there for, I had all I could do to raise my body to start walking again - well not really walking but taking tiny dragging steps to get back to bed.  Talk about scary.   If it would not have been the middle of the night I would have suggested going to the emergency room.   Something was drastically wrong.

This morning when I woke up, I could move enough to get myself out of bed, but my feet were still taking the tiny steps, and I really had to hold on to the walker for dear life.   After choking down some cereal, I went back to bed and slept until 11:00 a.m, and was more like my old self when I got up.  Still not real stable on my feet, but at least I could take my normal, usual steps.

I began to wonder if I was experiencing Bradykinesia that Debra discussed  in my last blog post.   Or was I progressing to the next level of Parkinson's?    It really scared me and I think it scared Don too.  

Then I happened to think today that I had seen my family doctor on Monday for back problems.   After getting the results back from the MRI and finding my back had worsened since 2008 (no kidding - I knew that before the MRI results were in), he gave me 3 new drugs to add to my cocktail!!   One of those is Gabapentin 300mg 2 x day.   This drug is sometimes used to treat seizures and used for RLS (of which mine has been getting worse).  I'll be calling the doctor's office Monday morning to tell him of these latest developments, but in the meantime, I dropping that drug.  

He also prescribed Clonazepam 0.5 mg 1 x day at bedtime.   This is used to treat panic attacks (I don't have that???).  The PAL says it clams your brain and nerves.  YIKES.     Now I'm not sure which one gave me the immobile symptoms, but I'll be stopping that one too until I talk to the doctor.  Fortunately, I had only started those drugs on Friday and it was Friday night when I had the problem.  So at least I don't have to go thru withdrawal symptoms.

The other drug he prescribed was Tramadol  HCL 50 mg 3 times a day with Tylenol - used for pain.  I'm sure Tramadol didn't give me the symptoms I experienced, so it has to be one or both of the other drugs.   I will take Tramadol before bed tonight along with Tylenol.

Oh how I wish I didn't have to be on all these drugs.   "They shoot horses - don't they?"  I've tried to maintain a sense of humor thru this entire time since being diagnosed with Parkinson's - but I must be honest - the humor is running out.

Mary

What Exactly Is Parkinson's Disease, by Guest Writer - Debra

Photo by Debra - location Northern Florida 

Dear Readers,

I'm so happy to have Debra of @Manxmnews back as a guest writer again.  
You'll remember from her post here on 10/8/11 her husband was diagnosed with PD in his 50's.   Debra has managed to sum up PD very well, as you will see.  

From Debra,

"Parkinson disease is a slow progressive, neurodegenerative disorder that occurs when nerve cells, called neurons, in the brain called the substantia nigra die or become impaired. These neurons normally produce a substance called dopamine. Dopamine is the chemical messenger transmitting signals in the relay stations of the brain, allowing for smooth, coordinated fluid movements of the body’s muscles.


The 4 main motor symptoms of PD are:

(1) Shaking and tremor Tremor is present in approximately 70% of people diagnosed with PD. The tremor in a hand or foot at rest is called a resting tremor. In 75% of cases tremor only affects one side of the body, especially in the early stages of PD.

(2)Slowness of movement, called Bradykinesia
Bradykinesia, is a profound slowness of movement, and a loss of automated movement, and is often a very disabling symptom of PD.

(3)Stiffness or rigidity of the arms, legs or trunk

(4) Trouble with balance called postural instability This causes people diagnosed with PD to develop a forward or backward lean and to fall easily.

Secondary symptoms of PD -Micrographia which is small cramped handwriting
-Reduced arm swing
-Slight foot drag on the affected side
-Freezing, a term used to describe being stuck in place when attempting to walk
-Hypomimia, loss of facial expression
-Dysarthria, low voice volume
-Retropulsion, tendency to fall backwards
-Festination, walking with a series of quick small steps

PD can also affect other body systems, resulting in non-motor symptoms. Some of those symptoms of PD include:
-decrease in automatic reflexes such as blinking and swallowing
-increase in dandruff or oily skin
-constipation
-sleep disturbances
-anxiety
-depression

Not all of the symptoms will be present in every individual, and the rate of progression will also vary from one person to the next.


Neurologists usually do not diagnosed PD until at least two of the four main symptoms are present over a period of time. The disease is both chronic, meaning it persists for a long period, and progressive, meaning it’s symptoms may gradually worsen over time.


PD is in most forms of parkinsonism, the label for a group of disorders with similar features. PD is also called primary parkinsonism or idiopathic Parkinson Disease. Idiopathic is a term used to describe a disorder for which no known cause has yet to be found.

The loss of dopamine producing neurons in the brain results in difficulty with movements. When the brain losses 80% of the dopamine producing cells in the brain, the main features of PD become evident. The cause of cell death is not known.

One theory about the cause of PD is free radicals -- damaging molecules generated by normal chemical reactions in the body -- may contribute to nerve cell death and lead to PD. Free radicals lead to oxidation, which is thought to cause damage to tissue, including neurons.

Another theory is PD may be caused by certain toxins, such as pesticides that destroy dopamine producing neurons. But there is no conclusive proof that external toxins are the cause of the disease.

Research is also exploring the role of genetic factors in PD. While several genes are known to cause specific forms of PD, the majority of the cases do not have a genetic link to PD.

One other theory proposes that PD occurs for unknown reasons associated with the normal age-related erosion of dopamine producing neurons in individuals. This idea is supported by the loss of antioxidant protection that is associated with both PD and normal aging.

There is not a clear understanding of PD, nor is there a current cure.

Debra


Thank you so much Debra for summing this up so well.  It's a complicated disease as you and I so well know.  And thank you for being such a good friend.   If I can ever manage to get back to Florida, I'll be anxious to meet you in person.


Mary

Another Aide!

Photo taken from Google Images

Dear Readers,


First I'd like to publically thank Kathy of @Meow_Girls for sharing her story of being a care giver (along with her sister Anne) of their father in the previous post.   I think it reminds all of us that being a caregiver to any disabled person is a full-time job and not an easy one physically or mentally.  Kathy and Anne truly are an inspiration to all of us.  They do have their hands full.


A few weeks ago, the neurologist suggested I get a walker because I had mentioned that I felt like my legs were going to give out sometimes.  This was especially noticeable when trying to shop.   Grocery shopping was not a huge problem, because I push the cart.   But when going to a department store or the local mall, I was always hoping there would be a cart at the entrance of the store to grab on to.  


I did not rush right out tho to get one because it's easy to procrastinate until the day comes when you really wish you had it to use.


When the neurologist prescribed the walker, he also wrote a prescription for Physical Therapy.   This was invaluable as the therapist was so very helpful.   Not only did she teach me things I could do at home to help build strength, but she also worked with me on trying to improve balance (a big problem with persons who have PD.   She watched me walk and suggested I also get a walker then proceeded to dig one of theirs out of the back room.  She recommended getting one with wheels, a seat so I could sit down when tired, and most important of all - brakes. 


Brakes are very important if you have PD and if you have a walker with wheels.    Going downhill on even the slightest decline (like the driveway) makes you want to go faster.  It's hard to control the momentum for some reason.


The therapist had me driving it all around their facility.   It was great.  I could stand up straighter when walking versus having the stooped over walk which is so typical of PD people.   One very nice thing I noticed right away - I could finally walk at a decent pace instead of creeping like a snail.   I felt like a kid with a new bike to ride.  


That afternoon Don and I ran downtown to the same Home Medical Store that we had bought the stair climber from.   They had to measure me for the walker, so I couldn't take it with me then, but I could pick it up the next day.   


When I asked if Medicare would pay for it.  The answer was yes, as long as there was a prescription form the doctor.  I proudly handed over my prescription, thinking I was so smart to already have that in my hand.    


WRONG - not so smart after all.   The prescription had to be exactly for the type of walker I was looking for. It needed to say with seat, brakes, and basket.   Otherwise, I would get the basic model - no seat, no brakes.  Something to keep in mind if and when you ever have to do this.


This meant going home, calling the doctor, and having the correct prescription faxed over to the home Medical store.    Nothing in life is ever easy or simple.


The walker was ready to be picked up the next day.   Fortunately, we drive a car with a HUGE trunk because this walker is not easy to transport because of the shape.  It does collapse by pulling up on the seat handle, but is still rather bulky.   It JUST fits in my trunk.   It is NOT the type of walker you can just shove in your back seat for transport.   A girl friend picked me up for lunch recently, and she had her car, which is somewhere between a car and a van.   It would not fit in the back without dropping the seat.   


One other piece of information - Medicare will only pay for a walker for you once every 5 years, so you are wise to keep that in mind when shopping for one.  In my estimation, that is fair, and quite frankly I was surprised that they even paid for this one.


I know this sounds like a product review - well it isn't.  I'm just so happy to have the mobility to go into stores without having to worry if I'll find a cart of some type to hold on to and, most importantly, I can sit down when I feel the need.     


It is a great invention, and you don't realize how great until you really need one.


Hope you'll come back next week because Debra, human mom to @Manxmnews will be a guest blogger again.  She's been doing lots of research too on PD, so came up with an excellent post you won't want to miss.


Mary